miércoles, 27 de abril de 2011

The snowflake disease

I've been meaning to write about this companion of 22 years which makes it's appearance every 10 years or so since I became aware of it...and, curiously, I just found out they call it the snowflake disease.  That's a very fitting name.  Myasthenia gravis is an especially unique affection different in each of us who have the privilege of experiencing it.

I'm not a masochist.  I'd rather have control over my body again, but I have the Snowflake to thank for the heightened awareness of knowing I sometimes possess a body and for the creativeness of dealing with my environment during those times when I'm trapped in the rag doll.

Since November 2010, I am trapped by the rag doll once more.

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